| Lucas is our miracle baby. He
is so incredibly full of "spunk" that you wouldn't often
know anything is wrong with him. When he is at this best
he really lights up a room. He and his condition have
changed our lives in many ways, most for the best. He
has taught us to live one day at a time and never take
anything for granted. His gifts have touched many. |
|
Lucas was born with Hypoplastic Left
Heart Syndrome (HLHS). He was diagnosed at 7 days of age, had his first
open-heart surgery at 11 days, and his second at about 4-1/2 months, and his
third at 4 years. We have
been fortunate to have the excellent care of the doctors, staff, and facilities
at Golisano Children’s Hospital at Strong in Rochester, New York, particularly
Dr. Roger Vermillion, Dr. William Harmon, Dr. George Alfieris, and Gina Cable, as
well as our wonderful family doctor in Hornell, Dr. Adrian Ashdown. We have
also benefited tremendously from the support of the staff and contributors of
the Ronald McDonald House within the Hospital at Strong. |
Lucas gets
his wish to go to Disney World !
Lucas and family will travel there in 2009.
A very special thank you to:
See the pics from
Lucas's Disney Trip
|
|
They say that "No matter how bad you've got it, there is
always someone who has it worse". We have found this to
be one of the great truths of life. We have met many
brave parents who persevere through situations that we
look at as much worse than ours. They are truly
inspirational to us. We are thankful for our gifts. We
have many. |
Our two
main purposes in creating this site are:
1. Give friends and family a easy way to check on
Lucas's status during procedures without feeling like
they are intruding and to ease the communication of his
status to everyone who wants to know it.
2. To share with those parents and families that have
recently had a child diagnosed with HLHS. We want to let
you know that there is hope! Hope for a relatively normal,
happy life for your child and family, that the journey
will have many peaks and valleys, and there will be good
days and bad days. We are lucky ourselves in that we
have had many more good days than bad ones. There are
some things that only HLHS parents will come to
understand. We wish that no parents would ever come to
have these understandings. But it will happen and we
want you to know that there are others out there who
understand and will support you.
|
